Why cant cystic fibrosis patients dating each other

We offer internet forums and platforms to enable people with CF to interact safely, and we live stream events wherever possible.

A Message for Teachers from Kids With Cystic Fibrosis

Did you know that we live stream our yearly UK Cystic Fibrosis Conference for people who can't attend in person? After the event you can access all of the talks and workshops online just by registering on our website or logging in and then following the link to our on demand section. There's something for everyone on our forum.


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Head on over and start talking about the issues that matter to you! Whatever challenges you're facing, if you need someone to talk to try our scheme for connecting people with cystic fibrosis.

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There's loads of support available for people with cystic fibrosis and their families, from grants to help with benefits. Your donation will make a difference: Learn about cross-infection Learn about travel insurance Learn about Trust research Learn about gene therapy Join a fundraising event Become a corporate supporter See answers to FAQs about cystic fibrosis Get the latest news about cystic fibrosis. A parent of a newly diagnosed child A person with cystic fibrosis Close to someone with cystic fibrosis Interested in donating A fundraiser A campaigner A clinician A teacher.


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Life with CF Find out what it means to live with cystic fibrosis. What is cystic fibrosis?

A real 'Fault in Our Stars' couple - CNN

Find the answers to all of your questions about cystic fibrosis. How is cystic fibrosis diagnosed? Family genetic testing The Sweat Test How is cystic fibrosis treated? Well, at least that was most likely the case until last night Grey's Anatomy might just be a primetime drama, but it sure has a way of turning our attention to tragic medical situations that would otherwise fly under the radar.

Cystic Fibrosis Patients on 'Grey's Anatomy' Got a Bum Deal

The most recent episode featured a couple who both suffered from cystic fibrosis , a genetic disease that causes sticky mucus to build up in the lungs and digestive tract. Two CF patients in a relationship is a no-no to the medical community. That's because they both carry dangerous bacteria that can kill the other. It seems like the Grey's writers had some interesting timing with this episode, because now there's new hope for CF Apparently, there's a new drug in the pipeline called VX , which is a pill that targets the defective protein that causes cystic fibrosis.

So, in other words, it treats the root cause.

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Most Rx drugs really just mask your symptoms! But the caveat is that the drug will only be effective in 4 percent of CF patients, because it treats a rare form of the disease.

That really is such a bummer! But I guess the good news is that they're hoping this drug could potentially be paired with another or somehow lead to a cure for more CF patients.